If 23 and Me goes bankrupt, they will sell all of the biometric data they’ve collected over decades to the highest bidder. Why can’t the US government step in to purchase the company and establish a public trust?

  • zephorah@lemm.ee
    link
    fedilink
    arrow-up
    5
    ·
    2 months ago

    How accurate is that data? I have a relative who received different results from their family tree than expected. So they sent it in again. Different results. Annoyed, they sent on yet another test. Again, different results. Not slight either, entire additions and subtractions.

    • SkaveRat@discuss.tchncs.de
      link
      fedilink
      arrow-up
      1
      ·
      2 months ago

      very accurate in my case.

      You really need to be careful when taking the samples. No eating, drinking and especially no kissing etc for a couple hours (at least 1h iirc)

      • IninewCrow@lemmy.ca
        link
        fedilink
        English
        arrow-up
        1
        ·
        2 months ago

        Probably works better if you are Caucasian with a long line of ancestors from Europe.

        I’m indigenous in Canada and I find that these tests don’t seem to work too well for minorities or indigenous groups that don’t have a lot of recorded history or a large percentage of individuals of the same ethnic background who take the same tests.

        Mine said indigenous which I already know … it just didn’t specify who what where or region other than North America.

  • 11111one11111@lemmy.world
    link
    fedilink
    arrow-up
    5
    ·
    2 months ago

    Why would the government care? Lol they don’t care about a genocide or crippling medical care costs why would they decide to have a moral compass now?

    • HessiaNerd@lemmy.world
      link
      fedilink
      arrow-up
      5
      ·
      2 months ago

      Honestly, the law enforcement implications of the government buying the database is just as scary as a 3rd party. Hell I bet a company buys the data and sells access to the FBI, and local law enforcement for a subscription fee.

        • HessiaNerd@lemmy.world
          link
          fedilink
          arrow-up
          2
          ·
          2 months ago

          You answered your own question. So they don’t need a warrant. For a fee, they can run ALL DNA collected against just about everyone, no probable cause required.

      • corsicanguppy@lemmy.ca
        link
        fedilink
        English
        arrow-up
        0
        ·
        2 months ago

        the law enforcement implications of the government buying the database is just as scary as

        … governments forming an arms-length secure repository for your healthcare or passport or tax or criminal data with regulations, procedures and penalties around proper or improper access.

        Oh shit: they do.

        Calm down. It’s in its worst state now, and the non-profit alternatives fail and go under as often as dotcoms (to similar off-sale effect after a period of really shitty security); so the idea of trusting the people you’ve elected to keep the public trust, to keep more of the public in trust, in the public eye and subject to your continued tuning at the voting booths, is a viable option.

        • corsicanguppy@lemmy.ca
          link
          fedilink
          English
          arrow-up
          1
          ·
          2 months ago

          I love the downvotes. Like “nah, it’d be cool to keep a guiding hand on this issue, but placing it in the only such way to do exactly that is for losers. Go Neutrons! You could take Regionals!”

  • HessiaNerd@lemmy.world
    link
    fedilink
    arrow-up
    3
    ·
    2 months ago

    Why should they?

    Anyone who used 23 and Me agreed that their genetic code was able to be used my 23 and Me for whatever they want. Why is it now the job of the government to jump in and give those people retroactive protection.

    • EleventhHour@lemmy.world
      link
      fedilink
      arrow-up
      0
      ·
      2 months ago

      Because those people never agreed to it being used by anyone else. And it’s in the public interest to protect everyone from their highly-sensitive biometric data being misused.

      • NotNotMike@programming.dev
        link
        fedilink
        arrow-up
        1
        ·
        2 months ago

        Unfortunately, everyone who used their service did agree to it. Directly from their Privacy Policy:

        Commonly owned entities, affiliates and change of ownership

        If we are involved in a bankruptcy, merger, acquisition, reorganization, or sale of assets, your Personal Information may be accessed, sold or transferred as part of that transaction and this Privacy Statement will apply to your Personal Information as transferred to the new entity. We may also disclose Personal Information about you to our corporate affiliates to help operate our services and our affiliates’ services.

        https://www.23andme.com/legal/privacy/#data-sharing

        Whether this will hold up in court is a bit murky. But without a large, laborious court battle, they can and will sell the data and they are “legally” allowed to

  • nimpnin@sopuli.xyz
    link
    fedilink
    arrow-up
    1
    ·
    2 months ago

    Wouldn’t it be just a lot easier to prevent them from selling it in the first place

  • 667@lemmy.radio
    link
    fedilink
    English
    arrow-up
    1
    ·
    2 months ago

    I’m surprised nobody mentioned the film Gattaca, which is centered around genetic identity.

    • minorkeys@lemmy.world
      link
      fedilink
      arrow-up
      1
      ·
      edit-2
      2 months ago

      Yet Millions of the same public gave 23nme their genetic data for basically nothing. So maybe trust isn’t the angle.